(Debra's
own description of Asperger's syndrome {in part})
Me (Debra) on my 39th birthday.
Oh, and Bearsac of course!
Five
months after diagnosing myself as an Aspergian at 38
years old, I was officially diagnosed. An Aspergian
(or Aspie for short) is someone labeled as having Asperger's
syndrome and is proud of it. Asperger's syndrome is
on the high functioning end of the autistic spectrum.
This
means that my brain is wired differently to a NeuroTypical
(NT) person. (A person whose brain is wired in a way that
the medical world considers to be 'normal' or typical
[the majority of people]).
Aspergians
brains tend to function better with logic, ability to
acquire and store a large knowledge on things that interest
them, observing things in finer detail, make decisions
without emotional clouding or peer/social pressure, and
be comfortable alone for long periods of time. Aspergians
are often (not all) intellectually gifted but are generally
considered to have a higher intellectual capacity that
the NT, but often face barriers in the education system
as it does not cater for the way we need to learn.
I
highlight these strengths first as Asperger's is portrayed
mostly as something wrong with people; it's not, it is
just a different way of understanding and perceiving
things physically and emotionally because the brain wiring
is different to the typical and the world caters for the
typical brained person. However, there are areas we can
find difficult or challenging.
The
parts of the brain that control social interactions tend
to be less developed and this means Aspergians often have
difficulties with social interaction in the typical way.
This can be learnt manually, as it has with me. I am a
reasonably social person and as an intelligent adult have
taught myself manually lots of the social rules and cues.
I store the manually learnt information like a computer.
This sometimes deliberate attempt to learn social rules
and behavior, matched with my logic and ability not to
cloud my judgment with emotion, has meant I can often
work things out even better than neurotypicals and deal
with the trials of life better than most or at least not
get so emotional about them.
People
with Asperger's syndrome are 'neurodifferent' rather
than 'neurotypical'. Also neurodifferent
are people that are said to have dyslexia, dyspraxia,
ADD, ADHD, ODD, Tourette's syndrome, autism.
I
have sensory overload issues and am oversensitive to some
sounds, smells, tactile and some visual stimuli. I find
multitasking challenging if using more than one sense
when concentrating or stressed. This can be typical for
lots of Aspies.
I
do consider my sensory overloads to be impairments but
not all my AS traits I have, some traits I see as strengths
or purely differences.
Like
lots of Aspies I have difficulty recognising faces (more
than the average difficulty NT people say they have).
I often don't realise I have met the person several times
before and it often occurs to me who people are only after
they say something, make a gesture or a facial expression
I associate with the person before I recognise them, even
if I don't know the meaning of the expression. I have
asked people how so-and-so is as I know they are connected
to that person only to find out they are the person I'm
asking about! I learnt to fake recognition some years
ago, but sometimes now, if time permits and I get the
feeling they won't be insulted will come out and say to
a person, sorry but I just don't recognise you or remember
your name.
I tend to have to say hello to everyone I pass in the
street in my area as I am not sure if I am supposed to
know them and don't want to seem as though I am ignoring
them.
Please
do not take offense if I appear not to recognise you or
have muddled you up with someone else.
'Having'
Asperger's mildly or being high functioning can
create challenges itself as people do not realise why
you appear as weird, naive, self-absorbed, rude, indifferent,
unfriendly, overfriendly to them as you seem, as they
miss out on the signs that you might have Asperger's as
you appear intelligent or very intelligent and the bit
they find weird does not match up to that in their minds.
If Asperger's is more obvious then people can understand
and maybe make allowances for your seemly odd ways and
maybe do not take offense so easily.
Aspergians
often have repetitive behavior or an unusual hobby or
interest, to which they devote a lot of time. (The medical
world and some of society sometimes call these interests
'obsessions') Bearsac is one such hobby and is one I made
up and have never tired of.
People
may say the whole Bearsac thing is part of my Asperger's
condition and that I would not do it if I didn't have
AS. I feel I still would do it whatever, as I am free
willed as part of my character. Some of the the repetitive
behavior with him may well be a small part but what is
more a part of Asperger's is the fact that I do not worry
or care what people think about me and the way I come
across with Bearsac. I can do what I enjoy because I enjoy
it and don't care that some people think it odd. The part
of the brain that worries about what other people think
does not always work in the same way with people with
AS as it does with NTs, who seem to be concerned more
about what other people think about them than they care
for their need for self expression and to do what they
want or not what they don't.
Another
thing with what is called Asperger's syndrome is that
Aspies tend not to see hierarchy (or assumed hierarchy).
So sometimes people take offense that I do the Bearsac
thing with them as they see it as though I don't hold
them high in enough regard to worry about looking foolish
to them. They would be partly right in thinking that,
I don't care what they think enough to worry if I look
foolish to them, and I don't care what they think about
me, but that doesn't mean that I have no regard for them
at all, I have regard for all humans, it's just that I
have confidence in myself as I am to be myself and not
change because of what people think, unless I deem it
necessary.
Not worrying what people think about me does not mean
I have no regard for them or do not see them as equal,
I see everyone as equal and don't look up to, nor down
on, anyone. But what happens is some people expect other
people to look up to them and then feel offended if they
do not. I suppose they see lack of concern about how one
looks to them as not looking up to them and they stupidly
take offense. So when these type of people see this woman
with a teddy bear they assume hierarchy over me and take
offense that I don't look up to them because I'm doing
the Bearsac thing and am not worried about looking foolish
to them. Well, those of guilty party, GET A LIFE! Isn't
it so sad when people overconcern themselves with what
people think about them; but isn't that what so many NTs
go through life doing.
I
often think without words or pictures, (it's more like
simply perceiving somehow). Forming words in my head just
slows down my very fast and often, unsequenced thought
process. I don't think mostly in pictures in the wide
way a lot of people on the austic spectrum do, but I do
sometimes think in flashes of pictures, just maybe only
a little more than NTs might sometimes do; it's hard to
know. I used to think other people don't think, I know
now, they do. However, I still feel people don't think
as much as I do, well, at least I think NTs don't think
as much as I do. For me to translate my unworded thoughts
into words, in order to communicate them, can be sometimes
be hard for me, and I often get misunderstood as I have
not translated my thoughts to speech successfully. The
processing between my fast mind and spoken communication
gets muddled up or is too slow a process to translate
effectively, partly, I feel, because I have bad immediate
and short-term memory.
Being
perceived as 'different' in a way NTs cannot accept, Aspies
tend to get bullied or left out more than NTs at school,
work and in society in general. This continues into adulthood,
often even with adults being bullied by children.
A
lot of people tell me I must be mentally ill. Asperger's
is not a mental Illness. When I was diagnosed with Asperger's
the diagnostic team agreed that I had no mental health
or psychological issues after asking questions aimed at
assessing if someone has mental health issues as a matter
of routine. Yes, Bearsac did speak to them.
To the people that attempt to dis me in this way (rather
feebly I might add) I like to say I have been certified
sane, how about you?!
Being
less naturally socially adept in a way that typical
society considers "normal" has been a barrier in my past
and can still give me some difficulties now. However,
I feel society still needs to evolve its view of diversity
to a more positive general consensus, to push back the
barriers it erects for people that have neologically different
brains. These barriers are perpetuated by the medical
world by their view of Asperger's as being a 'disorder'
and something a person needs to be mended of or cured
of. Also barriers are those created by the negatively
informing media to a majority society of NTs that have
difficulty thinking for themselves outside the social
constraints of our society at its current level of evolution.
I
feel now that my realisation that I'm an Aspie has given
me a skeleton key to many doors of opportunity; I just
have to find time to open them all and release the potential
I was unaware I possessed.
If you are
interested in your company, organisation or service receiving
Asperger's syndrome Awareness Training or Disabilty Awareness
training then please email me for details. I work within
the disability movement.
Debra
bearsac@bearsac.com
To
whom it is relevant
You
laugh at me because I'm different. I laugh at you because
you're all the same
(a
more genralised description adapted from internet sources)
Asperger's
syndrome (AS), is classed by the medical world as a pervasive
developmental "disorder"* commonly
referred to as a form of "high-functioning" autism.
It is not a mental condition... it is a neurological difference.
Individuals with Asperger's are often intellectually gifted
but are generally considered to have a higher intellectual
capacity while having a lower social capacity than Neuro-typicals.*
Aspies tend to have powerful minds, unique personalities
with strong individuality.
The term "Asperger's syndrome" was coined by Lorna Wing
in a 1981 medical paper; she named it after Hans Asperger,
an Austrian psychiatrist and pediatrician whose work was
not internationally recognised until the 1990s.
In
the 1940s, Hans Asperger studied a group of young boys
who seemed different from most children. These boys had
social and communication difficulties similar to those
of children with autism. However, they had average or
above average intelligence and possessed good language
skills. Dr. Asperger called this condition "autistic psychopathy."
This condition was widely ignored until Dr. Asperger's
writings were translated and published in English during
the 1980s or 90s.
Today, autistic psychopathy is called "Asperger's syndrome."
A lot of people proud of having Aspergers refer to themselves
as Aspies or Aspergians.
*"disorder"
Aspies tend not to like terms like "disorder"
This is a term used by the medical world. Aspies see their
brains as different and not disordered.
*
A neuro-typical (or NT) person is one whose
neurological (brain) development and state are typical,
conforming to what most people would perceive as "normal".
"normal" is a term disliked by Aspies and replaced
by neuro-typical
The major characteristics of Asperger's syndrome are:
impairment in social interaction and communication
repetitive or obsessive behaviors
preoccupation with particular subjects or interests
unusual
uneven skills ability
good (sometimes superior) grammar and vocabulary compared
to 'classic' autistics
normal cognitive development compared to 'classic' autistics
average, or more usually, above average intelligence
or very high intelligence
The
DSM1V (1994) diagnose Asperger's syndrome when all the
typical signs of Autism are present, but the person is
thought to have normal language development and average
or above average IQ*
*
Doctors tend to diagnose autism if IQ is below
average and/or there was a speech delay, and diagnose
Asperger's if average or above IQ and high functioning.
However, some autistics have above average IQ even if
it appears that they have low intelligence and
do not communicate verbally or are not high functioning.
Also some Aspies learn to speak earlier and more pedantically
than average but tend to maybe speak less by choice.
Famous
people considered to be Aspies:
History:
Mozart
Beethoven
Einstein
Newton
Alexander Graham Bell
Thomas Edison
Jane Austen
Vincent van Gogh
......many more
Current
times:
Bill Gates
Woody Allen
Gary Numan
Tony
Benn
Bob Dylan
Steven Spielberg
Keanu Reeves
The
preceding informations have been shortened or adapted
from sources on the internet
To find out more about Aspergers see these sites
http://www.key4learning.com/aspergerssyndrome.htm
http://www.nerdshit.com/archive/2005/01/04/some_autistics_/
http://home.att.net/~ascaris1/Advocacy.html
http://home.att.net/%7Eascaris1/index.html
http://news.bbc.co.uk/1/hi/magazine/3766697.stm
http://www.aspergia.com/passport/
http://money.guardian.co.uk/workweekly/story/0,,1950703,00.html
or
search on Asperer's syndrome on a search engine
for
an Aspie view on Neuro-typicals (NTs) see this link but
don't take offence!
http://home.att.net/%7Eascaris1/neurotypicality.html
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